Understanding the Diagnosis

Learning that your child has Autism Spectrum Disorder (ASD) can be overwhelming. Remember that an autism diagnosis doesn't change who your child is—it helps you understand how they experience the world and provides a pathway to support their unique needs.

  1. Take time to process

    Any diagnosis can be life-changing for families, and allowing yourself to absorb and understand your child’s diagnosis and process emotions that come is vital to being able to support them.

  2. Learn about your child’s specific diagnosis

    Many providers will give you information about your child’s new diagnosis with handouts, websites, and verbal information. Dive into the information you’re given, and never hesitate to ask for more. Consider searching for online support groups and in person support in your community.

  3. Identify your village

    It takes a village to raise any child, and that is no less true for a child with a disability. Whether it’s friends, family, educators, or a medical team, you have people that are on your side and ready to help you and your child however they best can.

  4. Explore intervention options

    As a family, it’s important to talk about the pro’s and con’s of the suggested interventions, and consider as applicable to your individual child. Never hesitate to question a suggestion, ask a question about a method, and do your own research about what you’re being instructed to do for your child.

Therapy and Intervention Options Through TOHF

PPECC’s with Nursing Care

Prescribed Pediatric Extended Care Centers (PPECC’s) provide nursing care for children with complex and severe medical needs.

ABA Therapy for Autism

Applied Behavior Analysis (ABA) therapy is available for children with autism to help improve communication, learning, and adaptive skills.

Physical Therapy

Physical therapy for developmental and neurological disabilities helps children improve mobility, strength, and coordination.

Occupational Therapy

Occupational therapy for developmental and neurological disabilities focuses on daily living skills, fine motor skills, and sensory processing.

Speech Therapy

Speech therapy for developmental and neurological disabilities supports communication, language, and feeding skills.

Educational Support

All children with disabilities have the right to an appropriate education that meets their unique needs.

Educational Rights and Options

  • Individualized Education Program (IEP) and 504 Plan

    Children with certain disabilities qualify for special education services. An Individualized Education Program (IEP) or 504 Plan outlines the specific supports and accommodations your child needs to succeed in school, and you can request an evaluation through the public school system.

Frequently Asked Questions

Does my child qualify for home health nursing due to their diagnosis?

Home health nursing qualifications vary between insurance provider, and it is best to speak with who is in charge of your healthcare benefits to verify you have coverage for your child’s specific needs.

Can a home health nurse go to school with my child?

Each school district in Texas has the legal ability to determine if they will allow an outside nurse to come to campus with your child; they otherwise are legally required to provide one if your child medically requires one. Advocacy groups are a good resource for providing help for those specific needs.

Are there any paid caregiver programs for me to be my child’s caregiver in Texas?

No, at least not until a child is 18. Respite care may be available, but usually that is part of a Medicaid waiver program.

How do I know what state-sponsored programs my child qualifies for?

Each diagnosis and child is different; therefore a case manager or social worker for your doctor’s office, a advocacy organization, or even Health and Human Services can speak to you regarding Medicaid waivers, waitlists, and other options for state-sponsored help.

Step-by-Step Guide to Maximizing Government Support in Austin, TX

Navigating government support systems can be overwhelming. This guide will help you access the resources available for your child with autism in Austin, Texas.

🔹 Step 1: Apply for Medicaid (if not already enrolled)

Texas Medicaid can unlock a wide range of services, including Applied Behavior Analysis (ABA) therapy, OT, PT, speech therapy, and in-home supports.

✅ How:

  • Go to YourTexasBenefits.com
  • Apply for Medicaid (use your child's disability diagnosis to support eligibility, even if your income is too high — ask about "Medicaid Buy-In" or "MDCP Waiver")
  • Call 2-1-1 for help with the application process

🔹 Step 2: Apply for the Texas Children's Autism Program

This program provides 180+ hours of Applied Behavior Analysis (ABA) therapy yearly — paid for by the state.

✅ How:

  • Call 2-1-1 and ask for providers in the "Children's Autism Program"
  • Or go to: Texas HHSC Autism Page
  • Providers will guide you through paperwork and eligibility

🔹 Step 3: Request an IEP (Individualized Education Program) through Austin Independent School District (ISD)

This is free support from your local school, including special education teachers, therapists, and behavioral aides.

✅ How:

  • Email or call your child's school principal or counselor
  • Say: "I am formally requesting a full special education evaluation for my child under IDEA."
  • AISD must respond within 15 school days

If eligible, your child will get an Individualized Education Program (IEP) that includes:

  • Speech, OT, social skills training, classroom accommodations, 1-on-1 support

🔹 Step 4: Apply for Medicaid Waivers (Extra Long-Term Support)

Waivers can cover respite care, home modifications, and in-home support.

✅ Waivers to Apply For:

  • MDCP (Medically Dependent Children Program)
  • CLASS Waiver
  • HCS Waiver (Home and Community-Based Services)

✅ How:

  • Get on the interest list ASAP (the wait can be years, but you can move up fast in emergencies)
  • Call 1-877-438-5658 (ask to be placed on every waiver interest list)
  • Keep your confirmation numbers!

🔹 Step 5: Apply for SSI (Supplemental Security Income)

SSI is a federal monthly cash benefit — over $900/month — for disabled children in low-income households.

✅ How:

  • Apply through Social Security
  • Call your local SSA office for help: 1-800-772-1213

🔹 Step 6: Use Local Nonprofits for Free Parent Help

These nonprofits will help you file paperwork, advocate, and unlock services for free.

✅ Use These in Austin:

🔹 Step 7: Track Everything (Documentation is Key)

Keep a folder or digital file for:

  • Medicaid approval letters
  • Individualized Education Program (IEP) paperwork
  • Therapy reports
  • Waiver interest list confirmations
  • Medical/diagnostic reports

🧭 Summary: The Max Benefits Strategy

Resource Benefit How to Access
Medicaid Health coverage + Applied Behavior Analysis (ABA)/therapy YourTexasBenefits.com
Children's Autism Program 180+ hours Applied Behavior Analysis (ABA)/year Call 2-1-1
Individualized Education Program (IEP) through Austin Independent School District (AISD) School-based therapy & supports Request evaluation at school
Waivers In-home care, respite, life support 1-877-438-5658
SSI Monthly income for your child SSA.gov
Local Nonprofits Free advocacy & help VELA, Easter Seals, TxP2P

Non Profits and Support Groups

Connect with The Open Horizons Foundation

We're here to support you and your child on this journey. Our foundation offers various programs and resources specifically designed for families navigating autism.

Contact Us Explore Our Programs